Via Our Mind Financial institution, the nonprofit she based, Ms. Morris inspired treating extra than simply the tumor.
“While you’re instantly advised that you’ve got a situation that’s thought-about terminal,” she stated on the podcast the Human Guinea Pig Project in 2019, “the one factor you desperately want is psychological assist, and it’s not there.”
She additionally needed to make sure that sufferers had entry to and funding for second opinions, in order that those that had been advised “nothing could be finished” by one physician would possibly search out a extra aggressive method in the event that they selected. She herself pursued a number of novel approaches, her husband stated, together with an experimental remedy that considered one of her docs had steered, involving an injection of herpes virus into the tumor within the hope of stimulating a defensive response.
“Even when I don’t know precisely how specific remedies would possibly work — and no person actually does — it form of is sensible to try to block as many pathways to the most cancers as doable,” Ms. Morris defined on the podcast.
One other aim was making it simpler for glioblastoma sufferers to enroll in scientific trials of medicine and therapies. The method of stepping into such trials could be cumbersome and irritating to sufferers with a restricted life expectancy. And since glioblastoma is a posh illness by which every tumor has completely different traits, Ms. Morris and her group developed an app that sufferers can use to report signs and share data with each other and with medical professionals — as an support to understanding the illness higher.
“Affected person symptom knowledge is a largely untapped pool of knowledge that may inform researchers, to allow them to higher design remedies,” Ms. Morris stated throughout a 2019 panel dialogue on patient-centric remedies. “Involving sufferers in that course of has the additional advantage of offering individuals with the illness to really feel they’re managing the illness, and never the opposite means ’spherical.”
Jessica Jane Morris was born on July 22, 1963, in Greenwich, close to London. Her father, Invoice, was an architect, and her mom, Elizabeth (Villar) Morris, is an artist.